What is ILWAD?
A place for those of us who refuse to allow a disability to become a defect, a disadvantage or a defeat. ( More Info? )
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Invisible Disabilities
Public Group active 2 weeks agoInvisible Disabilities are disabilities that are not immediately apparent to others. It is estimated that 10% of people in the U.S. have a medical condition considered a type of invisible disability.
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Tricia Sutton joined the group
Invisible Disabilities 2 months, 2 weeks ago · View -
Jules posted an update in the group
Invisible Disabilities: 3 months ago · updated 3 months ago · ViewA poem that just happened, on the frustration of ADD and mental fatigue.
Frustration.
Thinking too fast, processing too slow.
So many things to do, learn, try, so little energy to spend.Questions, connections, answers, clear and then vague, muddled but true.
Intelligence measured by output, I have none.
And yet,
the critical ability to weigh and measure, compare and contrast, dissect and discern goes on at such as pace as to render my thoughts as clear as white noise, the babble of a crowd of Nobel laureates, each one valuable but so few definable, like scooping water with a net.
Fantastic. thank you Jules
Beautiful poem Jules!!!!
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Cathleen Byrnes posted an update in the group
Invisible Disabilities: 3 months ago · ViewHello Derek,
I think that the greatest problem is the invisibility of our disablities. We look OK and so people feel free to berate us because we do not ”LOOK” handicapped. And then to top it off we get he guilt that ”some people have had it a lot worse”. Personally, I know a couple of wheelchair bound people and I sometimes envy them. They get assistance and help given to them without questioning, while I get neglect and indifference. No, I would not like to be in a wheelchair but sometimes they get around better than I do. But, you are not supposed to say such things—guilt.
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Derek William Haughtojn posted an update in the group
Invisible Disabilities: 3 months ago · updated 3 months ago · ViewI was diagnosed with Haemophilia at eighteen months old. A chronic disease rather than a hidden disabllity maybe, but as it prevented me from taking part in such things as contact sports i suppose it qualifies! Anyway as time went on and internal bleeding damaged my knees and elbows I became more and more restricted in what i could do. I fought back time after time and until I eventually had to use a wheelchair my disability was hidden by my own efforts.
The downside was the insulting things that were said to me, being sent to a building site as hod-carriers were needed, was just one. Being harangued on not giving up my seat on a crowded bus another. These things were minor irritations and I suppose others had much worse to contend with.
True, being how we are physical, mental, learning, invisible disabilities alike is frustrating. These issues are exactly why we have this website–Im glad you found us and are sharing your story. Welcome to ILWAD!!
-sarahDerek, thank you for sharing your story with us. Look forward to hearing more about you…..
Renae
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Derek William Haughtojn joined the group
Invisible Disabilities 3 months ago · View -
Cathleen Byrnes posted an update in the group
Invisible Disabilities: 3 months, 2 weeks ago · updated 3 months, 2 weeks ago · ViewHello, I’m new here and thought I would say hi. Does not look to be very active at the moment. Hopefully that will change.
I have several acknowledged and several ignored problems going on. I am currently getting med boarded out of the army and am in the WTU (broken soldier unit).
Earlier today I was speaking to a fellow broken soldier about having to arrange a contractor to adapt my house for handicapped living. He acted amazed and did not understand WHY I would do that. I look good but he knew that my restrictions during PT (physical training) were far more than his.
It had never occurred to me that someone who knew I had restrictions didn’t UNDERSTAND that I had restrictions.
Welcome Cathleen,
Great and Hi to you as well, and yes one can hope for change
And with best of luck in civilian life, thanks for your honorable service indeed.
And well understand your plight with contractors , not an easy task but sometimes one must write it on paper,dot the I’s and cross the T’s LOL for them to understand
So best of luck here, enjoy, browse around and hope a great new life for you and venture here
Jym
Cathleen,
Hello and WELCOME to the group!!!! Glad you found us.
RenaeHi cathleen tessa here! welcome to the site which is small, yes, but where I found good friendly people in no time. I wish you also will, am actually sure you will ! I’ll see and trytosend you a friend’s request, if I remember how to do so. Take care and feel free to write anytime you want. Tessa
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Jules posted an update in the group
Invisible Disabilities: 4 months ago · ViewMay 12 this year is the 20th anniversary of the International Awareness Day for ME, CFS, FM, MCS & GWS (Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, Fibromyalgia, Multiple Chemical Sensitivity, and Gulf War Syndrome) To help raise awareness for these overlapping and debilitating illnesses a Facebook page has been created to help ask Google to use this day as inspiration for their banner. Please have a look and like the page to join in the request, you can even create a doodle of your own.
Google please create a Doodle for May 12, 2012 – Info | FacebookGoogle please create a Doodle for May 12, 2012 – Info | Facebook -
Patricia Bonaccolta posted an update in the group
Invisible Disabilities: 8 months, 3 weeks ago · updated 6 months, 2 weeks ago · ViewHello, I’m Patricia. I just learned of, and joined this website and group. My invisible disability involves chronic pain and ensuing depression…won’t go into detail in my first post, except to say I’m on an intense freelance or part-time job search. Just want to say hi. So, hi!
Welcome Patrica!! signed @ronbercume
Thank you for joining us, Patricia! I can’t wait to learn more about you.
Be happy.
We are happy that you are here with us.
Welcome to the site, Patricia. Good luck in your job search!
Welcome Patrica!
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Gynell Gilicinski joined the group
Invisible Disabilities 8 months, 2 weeks ago · View -
Patricia Bonaccolta joined the group
Invisible Disabilities 8 months, 3 weeks ago · View -
Linda Drain joined the group
Invisible Disabilities 9 months ago · View -
BM Cappello posted an update in the group
Invisible Disabilities: 1 year, 2 months ago · updated 10 months ago · ViewHello to all. I am Barb, 47 Yo wife and Mom to a 19 YO. Epileptic and Depression. Nice to ”see” all of you.
Hello Barb, hope you like the site. Has your son seen the site as well?
Hello Barb, glad to see you here as well!
Hello Barb. I just got on here today…like you said…trying to find my way around. But sounds like you and I have the same problem. I, too, would like to get back doing some simple p/t job. My doc has so many restrictions on me…nothing complex, no multi-tasking, no driving or machinery. About all that leaves is being a greeter at Walmart, but I’ve got some back problems, too, so I can’t stand for long. I’ve been looking around at these work at home jobs, but have heard most of them are scams. Anyway, let’s keep in touch.
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Renae joined the group
Invisible Disabilities 10 months, 1 week ago · View -
Melisa Clifton joined the group
Invisible Disabilities 10 months, 1 week ago · View -
Kathryn Johnson joined the group
Invisible Disabilities 10 months, 1 week ago · View -
Courtney posted an update in the group
Invisible Disabilities: 11 months, 1 week ago · updated 10 months, 4 weeks ago · ViewHello everyone! how are we today? Any exciting news whether it be personal, about this group, about ILWAD or just in general? I sure could use an update from the wide world as I have been stuck in my room for a while. So let me know others exist
oxox
Hey court! Not too much exciting news, here, unfortunately. But…we have been having some really awesome articles written lately…hint, hint. Yes you rock, girl!
Why are you stuck in your room? Can you go out side for a bit? It was HOT here in California this week and last, and Im so glad it’s cooling off now. The perfect weather for me is 65-75 degrees–I like it mild, not too hot, not too cold. Take care, here’s a hug sent your way!
heheh mwah
I am stuck in my room – more like my bed from the symptoms of CFS. I need most of my energy to stay sane and to be able to chew and eat and shower etc. so I can’t afford to go outside when i am like that and being winter I don’t really want to
I love the fact you just say California
To us Australians it is this elusive wonderful place from the movies heheThanks for the hug! I got it nicely wrapped here with me
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BM Cappello posted an update in the group
Invisible Disabilities: 1 year, 2 months ago · ViewHello to all. My name is Barb. Married Mom of a 19 Yo who is in college. Getting to know the lay-out here. New to this kind of forum. I have been trying ot find a job to no avail. Been really frustrated at the way prospective employers treat people, especially ones with disabilities.
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BM Cappello joined the group
Invisible Disabilities 1 year, 2 months ago · View -
Jules Andre-Brown joined the group
Invisible Disabilities 1 year, 2 months ago · View -
Danette joined the group
Invisible Disabilities 1 year, 4 months ago · updated 1 year, 4 months ago · ViewThanks Jym! True its their loss not mine. People need to be more aware and understanding. My life is about awareness and advocacy. But good to vent sometimes. I am a very positive person and see the good things but ignorance kills me.
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