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A place for those of us who refuse to allow a disability to become a defect, a disadvantage or a defeat. ( More Info? )
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Physical Disabilities
Public Group active 1 day, 2 hours agoDisabilities is an umbrella term, covering impairments, activity limitations, and participation restrictions. An impairment is a problem in body function or structure; an activity limitation is a difficulty encountered by an individual in executing a task or action; while a participation restriction is a problem experienced by an individual in involvement in life situations. Thus disability is a complex phenomenon, reflecting an interaction between features of a person’s body and features of the society in which he or she lives.
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Kimberley Robbins joined the group
Physical Disabilities 1 month, 1 week ago · View -
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Physical Disabilities 2 months, 2 weeks ago · View -
Brad Weichert posted an update in the group
Physical Disabilities: 1 year, 3 months ago · updated 3 months ago · ViewHi, all!
Just new to both site and to this group. I have severe case of AS (ankylosing spondylitis) as a primary Dx. (diagnosis, but most of you know that). AS is an arthritic disorder for those who aren’t familiar with it.
I see a lot of you so far, struggle with fibro-, which is in the same family. Makes life a literal pain… well, all over. While I don’t have fibro-, I am well familiar with pain. So, I can relate on that level. With pain, fatigue is not far behind. So, there again, I can relate.
Along the way, I also broke my back in a dune buggy accident, so I have some life experience along some of those lines as well.
Guess what I’m trying to say is in life, all of us can relate to each other in some way. Having a disability, while it gives us a unique set of issues that adds (some of you may wish to use another word rather than adds, but it’s the one I chose) to our experience, this experience is not far from another’s.
When I hurt physically, it also wears on me emotionally, so it is not always easy to say the least. But, through my disability I’ve also been blessed. Blessed in ways I would have never been blessed without it. I’ve also had challenges that I would have never had without it.
Hopefully, through this group, and other’s like it, we can relate to each other through our ’special’ eyes each of our experiences has brought to us. Be lifted up, when we are down. Lift up, when we are not. But, never the less, share, grow & experience together…
Brad
Hi Brad, tessa here! I very much like yor comment and most of all i feel like i can share te part where you mention ’being blessed’ . I think so too, when i’m up, of course, I have been blessed, cuz I’d have never met (well, met on the net that is…) all the people I did meet hadn’t i been ’sick’. oh, i forgot to mention the ppl I had a chance to meet for real here in Milan, Italy, disabled as well as able… Beside the stroke i’m also bipolar and that makes it even more difficult for me to relate to ppl, as well as for them too……they need to be extremely patient………i can be really exausting………..hahaha. Ok, i come in a bit late reacting to your post, but so what? I try to comeon this site every second day and read as much as i can, posting whenever i feel to no matter what. and that’s what i just did here .all the best to you and family( if you have one) . BTW, would you like to befriend me?
Hi, Tessa!
Just got my equipment back that connects me to the internet. HURRAY! Back on-line again. It’s been down for weeks.
I would be honored to have you as a friend. But, I’ve forgotten what to do to make that happen. Oops! Can you give me some clues?
Currently, I live alone. But, have a sister who lives close by. She helps fill in some gaps.
I’ll not talk long now, as I have quite a backlog of email to wade through and to be quite frank, my bottom is coming up through my shouldes, if you get my drift.???
Give me a ’holler’ when you feel up to it & let me know how I should precede. OK?
Brad
Hi Brad, here’s the ”holler” u were talking about! listen, seriously no, no, not too seriously, I didn’t know where to post!!! So I’m writing here, hope it’s OK! what I mean is, maybe you’ll get an e-mail telling you there’s a message for you here maybe you’ll discover it by yourself, maybe you won’t either be alerted or see my message. in that case, I think i’ll knock at your door one more time to ask what’s going on. the fact is that i luv writing talking chatting ect with ppl, hopefully u do too and u don’t mind me being at times a bit ”intrusive”. fact is i’m italian, talkative and …..well very very talkative. but i also know how to listen. which is a lot more difficult, and alas not that many ppl know how to properly do it.
Since my stroke July 2008 I’m living alone. I’m saying this as an introduction cuz I want you to know that actually as a good friend lately told me, I am actually NEVER alone. I read a lot, slowly now due to my poor eyesight, but I thank god(?) I still have a bit of eyesight to be able to hold a book and page through.
Over chanukkah/christmas time (family of origin’s a mix) I got a Kindle to read at ease, you know 1 can actually enlarge the print and what’s most interesting 1 can upload i think up to 1800 books…..it’s actually very practical on trips, but I think i’ll still buy my old books ,i mean REAL BOOKS, so in the end i’ll have 2 copies, a real 1 and the electronic 1.!!! I luv the smell of books, their weight, the noise when 1 pages through the noise of cracking their spine open, the post-its 1 sticks on important pages, the notes 1 takes while 1 reads…….i could go on….but i won’t. i don’t want to become tedious. I am a bit of a polyglot I read in every language I speak and I speak 5 (though my spoken Spanish isn’t good at all, i still can read it pretty easily).OK; do u want to know why I’m writing to u all this nonsense? ok it’s no nonsense, but it’s probably not even what you expected to find on your page, or maybe u didn’t expect aything at all, much more probable I guess: well, I’ve been very, very nervous about a couple of hours ago. yep, still the issue with the new med, thought the doc is wright, I need it, issues with the stroke’s side effect, can’t yet properly cope with them, issues with just about everything……………..right i don’t think i ought to talk about all that now or i’ll end up nervous again……….!!!
writing relaxes me. thinking relaxes me. reading relaxes me. talking depending about the topic of course, relaxes me,. so here I am, trying to relax. and here u’ll be well if u’re still readin it’s here u r, trying to figure out where I started and where I want to end……..Sorry, I donno where. I haven’t a clue about where I’ll end up with this . probably no where at all. which is OK by me. sometime we need to go round and round and round, …………until we realize we’re stuck we keep on getting to the same spot, so we decide to take a different direction right or left, whatever.
Guess listening isn’t exactly what i’m doing tonight, uh?
Take care, it’11.20 pm here so I’ll try to go to bedand read for a couple of hrs
Tessa
PS: next time, if you’ll allow me a next time, it’s gonna be about music..,,,
hi Brad, got your answer today but sadly this is not a good moment for me, i’m actually down in the hole, reached pretty much the bottom, i’m sure u no what i mean. maybe I’ll tell u more tomorrow donno, now im even too low to talk, write, donno what to do or what to say feel so shitty
feel real bad sorry………………i should be sleeping now it’s 4.50 am here and i still havent closed my eyes…………………impossible……………the shrink told me to take a new med, but it makes me feel like a zombi, i dont want it………….so i didnt take it……………………and iu still feel like a zombi an awaken zombi…………………………shit……………..Hi, Tessa -
Sorry you’re feelin’ so low. Hopefully, things are looking a bit brighter by now.
There is many a night that sleep seems so very far off for me too. 4:00 – 5:00 a is not unusual for me. Although I tend to be a night owl, still it seems to be forever until my body settles in for the night and I drift off.
When one lies in the bed alone with nothing but their own thoughts, pains, etc. it does seem easier to go to the ’dark side’, so to speak. But, take heart, another day and experience will soon replace it. If nothing else, exhaustion will bring on much needed sleep, which in turn gives us a ’boost’ and we then have the energy to wipe some of the crap from our eyes that clouds our own vision.
My own experience has taught me to be up front with the doctors. In many cases it is an educated guess as to what they prescribe for each of us. Some times, it is not the medication they prescribe, but the dosage that’s problematic. Therefore, that ”zombie” feeling you refer too. That’s important feedback you need to give doctor also. Maybe he can change the dosage, if not medication, to still get the desired effect without so much of the ”zombie” feeling. What ’ya think?
Talk to you later,
BradHi Brad, how r u 2day? well, I should say 2nite since it’s about 11:30PM here, but wait, I donno exactly though it should be still day there…OK so, I was on this new pill, than i stopped then took it again…all things one should not do, I know but……………..it’s easier said than done……….. My sis, a VERY NICE sis, came to visit last nite to make sure I’d take that damn pill so….. I promised her i’d take it for a week…..hopefully the side-effects will wear off and I won’t feel like a zombie anymore. we will see. One thing is sure: I can’t possibly go on this way. the stroke I suffered from was a major one, I shouldn’t even be here, it’s been a miracle, I did the miracle, and please don’t get me wrong when I say so. I donno where u stand as far as religion, believes, creeds whatever. I personally do believe in ’something’, god, energy, call it the way u want. Still I also believe I DID the miracle cuz it’s up to us, to make things happen or not. we have been given a certain ’power’, we can’t just sit here and hope God does things for us. I don’t believe that. We must ’help ourselves’ so to speak.I got out of coma. Doctors donno how I did it but I did it. I couldn’t move anymore, now I do. and so on and so forth. it’s all in my profile, almost all. and I know the progress will eventually continue, but I guess slower and slower, the more the years go by. and that’s what actually kills me and pulls me down the hole once in a while, well, maybe a bit more often than just once in a while…. knowing there’s no possible way back. no more moutain-climbing (I was a mountaineer). No more lenghts to swim, no more walks, no more bicycle rides. my vision is also impared, though thanks god I can still read even though a bit slower than before, and I’m an avid reader. And I can still listen to music……………cant play piano anymore……………..but can listen yes, listen. and watch other skilled hands dance on the keys……………….(Blessed be YouTube and DVDs!)
Anyway, even though from one side i don’t feel complaining with u or others on this site is the rite thing to do, it is undoubtedly true that ONLY u and I and ppl like us with disabilities no matter what disability, ONLY WE can understand the hell we’re going through day by day, night after night that’s actually why I didnt feel particularly culpable when opening up the other day, and even getting a bit angry at Scott and his motto: I am beautiful, not broken!’ Well, in that particular moment as well as in many others I DO FEEL BROKEN, NOT BEAUTIFUL, not beautiful at all….
so well, im done complaining now. would u like to do some talking? feel free, whenever u’ve got some time. take care, tessaHi, Tessa!
I thought I answered this one already. Guess not. Still not sure how this site works & how to do things on it.In a nutshell, I’ve had to re-make myself multiple times as my disability has gotten worse over the years. In fact, it is an on-going process. Before my disability, I, too, was very active. I played football, baseball, even a little basketball. I was a very active swimmer and water-skier. In fact, at one time, I was even a life-guard. Where some people jog a mile or more, I would swim it. Now, I am just a spectator at best.
Musically, I was a good trumpet player, playing not only in H.S., but college bands. I also did lots of solo work. When that left me, I took up singing. Sang in a chorale group that traveled internationally in venues with philharmonics, etc. Also, did quite a bit of duet work in churches, etc. Now, not only can I not play my trumpet, but cannot sing anymore either. As I’ve attempted to re-make and compensate, I even did the bookings and ran the sound system for a small gospel group for a few years, during which time we traveled around the U.S., Mexico and Canada. Now, that is gone also. My latest venture was where I would book various musical groups to perform at a small ministry I ran. I share this only because you are not the only one who bemoans the ’once was’ and has to face new, and sometimes on-going realities. In your case it was mountaineering, swimming, hiking, bicycle riding and playing piano. All things you used to enjoy, helped fulfill you, and you took your identy in. Now, you too are reduced to a spectator. BUT, take heart, all is not lost. Like you said, you can still listen, and appreciate other ’skilled hands’ as they dance over the keys. That, my dear, is more than many other people can do, as they never had the background you’ve had. Your appreciation is heightened all the more because of your past experiences.
So, we are faced with a choice, almost daily. We can continue to get continually depressed over what we’ve lost, OR, enjoy the special abilities we still have and have a special appreciation for because it was once part of our repetoire.
Now, that is not to say looking at what ’once was’ won’t depress us once in awhile, but we need to try to look beyond that and give new meaning AND appreciation for both the history of what ’once was’ and the abilities we still possess. Along the way, we may even discover some extra depth we never knew we had before. Finding new ways to enjoy the varied activities we continue to enjoy. You do that in some ways now. Take your love of reading. As your eyesight worsens, with age if nothing else, you’ve already discovered you can continue to enjoy reading even if you need to do so more slowly, or increase the text size on your electronic reader if needed. Your love of reading hasn’t changed, only the way you do it.
And, yes, I get down on myself too, at times. And, also, yes I do believe in a ”higher power” And, I call him ”God”. Many times, it is only through that belief, and my understanding of Him, that helps me face another day.
So we often find ourselves feeling ”broken, not beautiful”. The trick is to also find ourselves as Scott says, ”…beautiful and not broken.” Most times, it is the inner voice we’ve chosen to listen too at any given point in time.
’Till next time,
BradTESSA – THIS CAME BACK TO ME. IT WASN’T DELIVERED, SO I’M SENDING IT TO YOU AGAIN. HOPE IT ARRIVES, EVEN IF IT IS QUITE LATE NOW:
Hi, Tessa!
You ARE a miracle. And, yes, I believe in them and in God.
I both agree with you & don’t agree with you. While it is true that God did something miraculous in you and thru you AND that often/usually it is up to us to do something with it, I don’t believe God just leaves the rest up to us. I believe that God wants us to work with Him as He continues to work in our lives. Maybe you are trying to say the same thing and semantics are just getting in the way.
I know this for sure, that without my belief in God, I would not be here today either. Nor, could I have made it thus far, as I would have thrown in the towel a long time ago.
Most of us with significant disabilities go through, or are going through, significant down times. Sometimes, just ”hanging in there” is a miracle in itself.
I, like you, have had to ’rearrange my life’. Where you used to be a ”mountaineer” and very active swimmer, etc. and involved in music through your piano playing, I, too, have had to continually restructure my life as my disability has progressed. Where once I was very active in sports (baseball, football, gymnastics) and an avid swimmer and waterskier. I no longer can do any of them. Only watch. I was also very active in music; playing the trumpet in bands, small groups and solo work and, even singing in chorale groups and doing duets in churches, etc. Now, I listen and just appreciate. To try to stay involved musically, I even did the bookings and ran the the sound system for a traveling gospel group for several years. So, as my disability got worse, I’ve had to continually shape and reshape my involvement through the years.
Life for anyone, disabled or not, is full of ’ups’ & ’downs’. However, when disabled, one may have to re-shape their perspective on things too. For instance, at one time you couldn’t move at all. Now you can. (Hurray!!!) To a non-disabled person, they look at both of those factors and say ”poor _______” Whereas to you it’s a miracle! It’s all in the perspective. What seems like a downer, can be a blessing based on one’s perspective. The trick for you & I, as well as many others with disabilities, is often choosing the perspective we want to listen too at any given point of time: what we’ve lost vs. what we still have so to speak.
For an avid reader, again it’s in the perspective. We can focus on the fact that one can’t see as well, OR, on the factor that you can still read, even if it is more slowly, takes more effort, or even with some other adaptation. The truth is you love the word pictures reading creates for you. It takes you to other places, times and situations. It gives learning and clarity. What you love most, you still have, even if your method has changed.
And, YES, I’d love to talk more as time and situation allows.
Brad
Brad, it doesn’t matter if it’s late, actually it’s never too late for a good letter/ a good talk, as this is the case. Now I understand why about a week ago you wrote some place up above, you had the impression you answered that message of mine already……….this letter above WAS your answer, which I only see now that you post it.
Firstly I must, better said WANT to thank you, both for you taking your time and answering me, and for the gentle invitation to write more. Here I go then, since I’m on my mac now, before going to the art studio (BTW did you see the pics I’ve post on my page under Album? There are only two of my artwork there, as I’m trying to figure out a way to shrink the pics in order to post more at the same time.)
I’m sorry, I didn’t even ask you how you were doing ………So, how are you doing today, Brad? How are your days/weeks structured? I’d be glad to know as much as you’ll allow me to. These weeks, as far as these last couple of months are concerned, I’m pretty disorganized, which isn’t at all positive for my well being. I’m going through one of those moments where no one and nothing is right. Well, I in the frst place AM NOT right. It’s a down moment, a very, very bad and long one, so sitting here at the computer is actually a very,very healthy (strange, huh?) exercise, certainly NOT for my body but for my mental health, for my soul, so to speak.The exercise of writing, as well as reading or watching a good movie, listening to music or, of course drawing, helps me concentrate on different objects disregarding whatever the matter with me, be it the weight-gaining, the still unfamiliar looks, the many difficulties one faces throughout the day. I’ve really appreciated your word choice as you expressed the forceful need we ’differently-able’ people have to constantly re-shape ourselves, to accomplish the various activities, to meet the different opportunities life offers us day after day, in other words, to fight against all odds, and never drown. Never drown? I’ve just felt like drowning, I WAS drowning a couple of hours ago, again, just like yesterday and two days ago……..!! It’s maddening, it’s my mood-swings, the change in treatment, I know it’s all this, I know, yet I’m afraid I won’t make it this time, every time I tell myself it’s too much, I won’t make it this time, not this time………what makes this time different from other times? you’ll ask; I’ll tell you what. It’s the loneliness. Every time I feel a bit more different, a bit more lonely a bit more apart. Yes, that’s how I feel, regarding my ’almost’ grown up children, my family of origin, my friends, everyone…………Of course both my sister Manu and good friend Micaela (Miki) will object it is I who isolates, I who keeps them distant, I who shuts the door. True. ’Cause I AM TIRED. I can’t anymore, but I DON’T WANT THEIR HELP. I must manage on my own, once in my life I must do it on my own, and on my terms, too. I know it’s possible, it must be possible………….and here you and all the other disABLE people jump in…..here is what I guess you some other place so well put down in words: THE BLESSING, the blessing of having or having had the privilege to ’meet’ , ’come across’, ’talk’, ’exchange opinions’ with all of you in general and some in particular. It all helps, it all counts to me, you all make a difference a big huge difference. I could be laying on my bed now, crying my eyes out on how terrible my condition is on how hard life has been with me OR I could and AM here, sitting at my desk writing this to a complete stranger I like calling Superbrad because of his funny, childish Alias, whose messages are and will be always welcomed as a sourse of strength, willpower, endless determination.
Thank You
TessaP.S.: You made a BIG mistake there, where you stated you’d loved to talk more……hehehe
next day, today……looking back I realize maybe I dont express myself, no, very VERY POSSIBLY i don’t express myself like a nice, middle-class American lady would. I mean, Im Italian, yes middle class but European and Italian, and well me all over and in all cases me me me. sooo, well that said, please do not misinterpret any of my words, the PS up here meant me being quite logorrheic you ( and others) might be now in danger for more letters from me. In case I happen to be just, let me know and I’ll make it shorter next time, much much shorter. OK? Tessa
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Scarlett Bjone posted an update in the group
Physical Disabilities: 9 months, 3 weeks ago · updated 3 months, 4 weeks ago · ViewNew to site (about 10 minutes old) and new to this group. Boy I seem to jump right in…lol I’m joining every group that appears to relate to me! Need to learn my way around. Any help would be greatly appreciated.
I’m really new here too…my first day actually posting…did you find anything interesting??
Anissa, you replied to a post I put on this site about 3 months ago. Don’t fret tho, I found this site very difficult to maneuver through and figure out myself. Spent several hours at a time just trying to understand how to do things on here. I kinda gave up trying. Other than the administrator (Ian I thing) and a couple of people that might be considered greeters for new members. I’ve only actually gotten one person to talk to me ”once” (and now you also). I’d be happy to be friends with you if you’d want to. Maybe we can figure this site out together.
Scarlett
DOH!! Well, it’s the first reply i remember. Sure it might be good to be ”friends” and have someone to talk to on here. Weird as a question as it might be, what are you hoping to find here that you don’t find other places?
I just sent you a request to be friends. To answer your question… I was hoping to find people who have had hardships dealing with their disabilities (like I have) and who want to meet others that can empathize with each other. Actual people to talk to, maybe learn from (or learn from me as well) and people who can really understand the things we go through and know how our lives can be so changed by what’s happened to us. I haven’t run into any place where I can actually be ”part” of something. Just a lot of sites that ”tell you what to do, what you can do, what you should do”, etc. But no where that I can actually be a part of anything. How about you? Why are you here (or what lead you here)?
Anissa, Scarlett hi there! My name’s Tessa,and I iked your posts.
And I’ll trell u why: cuz no one here will ever judge us no matter what, cuzvI personally feel free to post positive as well as negative remarks, depending on my mood swings, and being also by-polar my mood swings are ….some…..swings!!!!!!!!!!!!! oh well, if someone doent like them he can just avoid reading them or answering them,but i’ve got nice comforting answers to some negative things here, and i found that really sweet………after all, it wasnt a must, it shows ppl can and will be nice when they get the point and here everyone gets it cuz, we all see the world, as someone here said,with the same kind of ’eyes’…………don’t u think?
Hello everyone–only been a member for a few days and sort of fell into the site but find the more you post about yourself people will respond. Would love to have the opportunity to share with anyone here. I think this is what the majority of us are looking for, just people to connect with no matter what we face individually.
You mean like I just did here with Anissa? lol And yes, I think your right about ”why” we are here. But for lack of a better way of describing my experiences here… I feel like (since joining this site) I’ve been in some kind of a bubble or sorts. Like this site isn’t really what it appears to be. Like the only actual people here are those that monitor this site for any activity (like they are ”studying” those that join). I’ve tried to search for people, first who appeared to be in my general area, then expanded to within my state, then expanded to the US, etc. But it seemed like many listings are ”fake” (and without any type of profile what so ever). Or perhaps they’ve just came and left… I am not one to give up so easy and that’s why I’m still registered here for the past 3 months (hoping someone will actually contact me in some way). This site is not very user friendly and I think we’ve all had problems navigating around it. Not even the ”groups” are easily figured out. The groups I’ve explored are very generic (in title) and they seem more like ”clicks” and they are all the same people that don’t respond to outsiders. Perhaps our memberships are merely someone’s experiment for a thesis paper on loneliness or something. I don’t know yet.
I hope you’ve gotten some results based on your theory (”the more you post about yourself people will respond”), but if it’s anything like what I’ve experienced, your responses with be ”one shot connections”. I hope I’m wrong, but…
Scarlett, there are NO fake accounts. If anything, inactive accounts, people who registered over the last year and do not visit often.
It is a new project, with a small but growing base of membership. It is often quiet as we dont have thousands of active members, but everything is authentic.
It is a small project run by a small group – and we are doing our best to grow it without funding or much support at all.
There is no one ”Studying” anyone.. lol
Just to add to this, each member, within their respective profiles, can ”Show” or ”Hide” information within their personal profiles. So, if you are seeing accounts that only have a name, or alike, it is because that member has hidden all the other data, or has not provided it. The member profiles are setup and configured as such to allow for each of us to customize privacy settings on demand through editing of your profile.
I would like to give Ron and the rest of the Team KUDOS for everything you guys do. It takes a lot of work to keep a site like this going and Ron and the core team have dedicated their free time towards something they strongly believe in ILWAD. Or is it I’m beautiful not broken? Although in my case there’s more broken then beauty. HAHA. So thank you ILWAD team for all your hard work. Hugs Renae
Thanks for that R!
Feeling a lot of the ”you’re so inspirational” responsibility. Looking for that place where so many people aren’t watching my story from the outside (i’m a blogger) and more people are able to understand what this is really like. and if i typo/type weird/or use strange shorthand it’s cause i type with one hand.
EXACTLY… Understanding what it’s like and what each other has faced lets you know that your not alone. Not only that, but also, I’ve found speaking with those who haven’t had our experiences, make them uncomfortable for them to be around us. They think by our ”talking about things” with them, that they somehow should be feeling ”sorry” for us or feel like we’re looking for them to do something to make it all better. They don’t understand that we’re not doing that, we just want them to understand, that’s all. But in my experience, people now feel uncomfortable around me. I don’t know if that’s because they are afraid I’ll become ”dependent” on them or if they just don’t like being around me because I’m different in some ways now.
Hey, I’ve just joined that group you recently posted in. The group about disabilities and relationships. I’m about to get on a soapbox in there! lol When I checked it out, I thought that for sure that group would have a lot of activity in there, but I was shocked to see that other then your post today, it hasn’t been active in MONTHS. So how about we get something going in there? What do you think? You game?
If there is any questions I can help answer about the site feel free to message me or ask here. I am working on video FAQ for the site to help people learn how to use it, but this will not be available for some time.
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Scarlett Bjone joined the group
Physical Disabilities 9 months, 3 weeks ago · View -
Ron Bercume posted an update in the group
Physical Disabilities: 9 months, 3 weeks ago · ViewFour universities won a $1.2 million grant to develop prosthetics that deliver sensory information to patients and can be controlled by their thoughts. Rice University, the University of Michigan, Drexel University and the University of Maryland will work on the four-year project with funds from the National Science Foundation’s Human-Centered Computing program.
Read the article here: http://bit.ly/prJ092
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Ron Bercume posted an update in the group
Physical Disabilities: 9 months, 3 weeks ago · ViewAmputee Youth Camp inspires Donovan – Soccer Blog – ESPN Los Angeles http://es.pn/oiMDpk
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Courtney posted an update in the group
Physical Disabilities: 11 months, 1 week ago · updated 11 months, 1 week ago · ViewHello everyone! how are we today? Any exciting news whether it be personal, about this group, about ILWAD or just in general? I sure could use an update from the wide world as I have been stuck in my room for a while. So let me know others exist
oxox
I went to the mall today and got a super retro dress. So cute. I will take a picture if ya want lol
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Ron Bercume posted an update in the group
Physical Disabilities: 11 months, 2 weeks ago · ViewLearn more about Paralyzed #Veterans Sports & Recreation Program at http://www.pva.org/sports
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Courtney posted an update in the group
Physical Disabilities: 1 year, 7 months ago · View -
Jennifer Holman posted an update in the group
Physical Disabilities: 1 year, 10 months ago · updated 1 year, 7 months ago · ViewIt’s hard thinking of something to post that isn’t just listing my whoa’s. It’s also scary to think of posting close to the heart thoughts.
I used to be an active member of a group dealing with pain. It took awhile for our few members to let down their guard. It took time for us to realize that this was a fairly safe place free from severe judgement and simple cruelty.
Fibromyalgia is charaterized by constant widespead pain and muscle fatigue limitting activity. It is rarely diagnosed until all other possible medical explainations for these and the accompanying symptoms have been ruled out. It took 8 years of various test and by dozens of doctors for me to get a firm diagnosis. ’Twas discouraging.
Thank you for sharing. Please feel free to say what you have to say about your life and what good or bad goes on. I’m sure other people go through the same things we all do. Take care.
Whoa’s are perfectly acceptable to share with us, if this is where you are at with life today! ; ) We are here with and for you Jennifer. I am luck enough to live life pain free, but the single mother who raised me has been in sever pain for most of my life. So, we understand, and so much appreciate you sharing with us. | Ron @ronbercume
Hi poppet! I am sorry to hear you have fibro. I know you will find a lot of support here but I find it is always comforting to have someone not only for support but someone who understands exactly. I have fibro too and am trying to go natural with pain alternatives so if you like I can keep you posted and if you need anything at anytime or any information I have heaps and I made sure it is easy to understand information. Stephanie has a fantastic knowledge base too. You have come to the right place
Lots of love oxox
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Courtney posted an update in the group
Physical Disabilities: 1 year, 7 months ago · ViewHello. I would like to know if there is anyone here who has Tourette Syndrome? I have 18 years of personal experience with it and am really now, literally right now, decided to talk about it to help others like me who may have dealt with it really well and coped with it but not ever felt comfortable re-hashing it. So I just want to put this out there in case there is anyone who wants to chat or supporters of ppl with TS would like to chat if they feel they can’t talk or ask questions of their loved one as it can be really hard and embarrasing. I am here
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Courtney joined the group
Physical Disabilities 1 year, 7 months ago · View -
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