Idiopathic Autonomic Neuropathy

I am the first person in the world to be diagnosed with Idiopathic Autonomic Neuropathy. Here is my story:

My symptoms started when I was twenty and my symptoms were normal, so nobody was expecting my illness to progress to something worse.  I had my two kids and the doctors said it was female’s problems, so I had a hysterectomy by the age of 25.  In the mean time, I was losing functions of my body, such as my bladder and colon.  That’s where some of the other diagnoses started coming in place.    Continue reading “Idiopathic Autonomic Neuropathy”

The Olmstead Decision

The Olmstead Decision is one of the most important Supreme Court decisions regarding people with disabilities.  This decision orders States to comply with the American with Disabilities Act to provide services for people with disabilities in the least restrictive environment. Continue reading “The Olmstead Decision”

How Far Are You Willing To Go?

The news is full of our “leaders” who want to cut benefits, institutionalize us or ignore our basic human rights altogether.  These stories can really get you down, if you let them. We always hear about the legislation and the negative stories, but you rarely see any of the positive news. Continue reading “How Far Are You Willing To Go?”

Justin Dart, IL Leader

Wherever Justin Dart went, his ‘signature’ hat was sure to be with him. To this day, his hat still attends events in his absence. He was wearing it on the White House lawn the day the ADA (Americans with Disabilities Act) was signed by President Bush and it was atop his head whenever he was out rallying support for disability rights.

Justin Dart (August 29, 1930-June 22, 2002) is known for being the “Father of the Americans with Disabilities Act,” the “Godfather of the disability rights movement,” and the “spiritual leader of the IL [independent living] movement.” Continue reading “Justin Dart, IL Leader”

What is a CIL?

Centers for Independent Living (CILs) are organizations run by and for people with disabilities. All CILs offer four core services as well as a host of other programming to assist people with disabilities. The work and services of a CIL are aimed at empowering people with disabilities and making sure that they have access to their communities and can better take control of, and make decisions in their lives.

Centers for Independent Living (CILs) are organizations run by and for people with disabilities. All CILs offer four core services as well as a host of other programming to assist people with disabilities. Continue reading “What is a CIL?”